Calls for better supports for those suffering with EDS

EDS affects over a thousand adults and children across Ireland.

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A group representing people with a genetic condition that affects joints and mobility is calling for better support from the State.

It's EDS awareness month - with calls for greater supports and awareness about a genetic condition that affects over a thousand adults and children across Ireland.

Athena Relihan is the head of Ehlers  Danlos Syndrome Awareness Ireland.

She's asking people to contact the organisation on Facebook during EDS awareness month - to help bring attention to the condition.

She says there are no specialists or facilities to help people here - with most patients forced to travel to the UK for a diagnosis.

'I'll dislocate very, very regularly, and the joints are so lax I'll just put it back in.'

'That's not uncommon for us, were just used to it and we get no help, there's no specialist here.' 

'You're being medically gas-lit and told its all in your head and it's fine.'

'Then you finally get diagnosed, and you're still treated like that most of the time.'